- About the Study
- Frequently Asked Questions
- Meet Our Team
- New York: Columbia University Medical Center
- Ontario: Samuel Lunenfeld Research Institute of Mt. Sinai Hospital
- Philadelphia: Fox Chase Cancer Center, the University of Pennsylvania and The Children's Hospital of Philadelphia
- San Francisco Bay Area: Cancer Prevention Institute of California
- Utah: Huntsman Cancer Institute
- Legacy Girls Visits
- Personal Experiences
- For Girls
- For Researchers
- Contact Us
What’s the LEGACY Girls Study all about?
The purpose of the study is for us to learn how the habits and development of girls age 6 to 13 are related to breast health in adult women. This study helps us learn how girls grow up. You can help us find out how differences among young girls and teenagers are related to women’s breast health later in life. The LEGACY Girls Study is a 5-year study, with visits every 6 months.
Do I have to be part of this study?
Joining the study is YOUR choice. No one will be upset with you if you say NO. Even if you say YES, you can change your mind and stop the study any time. You can also decide to do only parts of the study. Even doing parts of the study will help our research. Your parent or guardian will also participate in the study. They may be with you for any part of the study.
Will I get results from the study?
No, you will not receive any information about your health. The purpose of the study is for us to learn how habits and development of young girls relates to breast health for adult women.
What do I have to do?
There are a few different parts to the study, and each of the participating research sites may do things a little differently depending on the location. The Study Coordinator at each research site is happy to discuss all the details of the appointment with you and your parent.
• You will meet our female study coordinator to review what the study is about and have your questions answered.
• We will measure your waist, hips, height, weight, and foot size.
• If you are willing, we will have you give a small blood sample, a saliva (spit) sample and a urine sample at some of your visits.
• If you are 10 years or older, you will be asked to answer some questions about your general habits, behavior, diet, and exercise.
What questions will I be asked?
If you are at least 10 years old, we will ask you some questions. If you are 9 years old or younger, we will ask your parent or guardian these questions. Here is what we would like to know:
• About your general health
• How active you are
• About your breast development
Will anything hurt?
If you decide to give a blood sample, we will take a small amount of blood (about 2 tablespoons). A trained professional will use a needle to take the sample from your arm. The poke is quick and might hurt for just a second. Nobody likes needles, but a blood sample can tell us a lot about hormones and allow us to study how girls’ bodies grow and develop.