Legacy Girls Visits:New York

Name of Site: New York, Columbia University Medical Center

 

 

1.   WHERE do LEGACY visits take place?
Both baseline and follow-up visits of the LEGACY Girls Study take place at the uptown location of New York Presbyterian Hospital/Columbia University Medical Center  located near 168th Street and Broadway. The medical center is located immediately southeast of the George Washington Bridge.

2.  WHEN do LEGACY visits take place?
Because we value your time, and understand that your family is busy, LEGACY appointments are scheduled at your convenience. Once you have checked your calendar for a date and time that works best for your family please contact us at (212)304-6433 or legacygirlsstudy@columbia.edu,   to schedule an appointment.

 

Typically our clinics run:

  • Monday through Friday between 9AM and 5PM
  • Select Saturdays starting at 9AM
  • Select evenings with advanced notice

Please let us know what works best, and we will be happy to accommodate you!

3.   WHAT happens during a LEGACY visit?
After the appointment is scheduled, you will receive a packet in the mail with items for you to review before your study visit. This packet includes the study consent and assent forms for you and your daughter, a kit for your daughter’s first morning urine sample, and either hard copies or a link to self-administered questionnaires that can be completed at home before the appointment.
At your first LEGACY visit, the female LEGACY coordinator(s) will meet with you and your daughter(s).  The first thing she will do is review the consent/assent forms, and answer any questions that you may have before asking you to sign the forms.

Your daughter’s participation involves:

  • Collection of a first morning urine sample;
  • Body measurements (foot size, weight, height, hip, waist, and body fat);
  • Tanner staging, or a check of the girl’s breast development. Either a female pediatrician or a female trained pediatric researcher will be present at the time of the appointment to complete the Tanner staging.
  • Collection of a small saliva sample;
  • Collection of a small blood sample (optional);
  • For daughters 10 years or older: two self-administered questionnaires (one on puberty and development, and the other on health behaviors, knowledge, and feelings).

 

Your participation involves:

  • Complete self-administered questionnaires (may be completed prior to the visit if you choose to do so) on your daughter’s birth weight and length, her exercise history, her pubertal development, your family’s  cancer history, and health behaviors, knowledge and feelings;
  • Collection of a  small blood sample (optional);
  • An in-person interview about your daughter’s health, medical history, and family environment;
  • If you like your first LEGACY visit, we ask that you refer a friend, family member, or colleague with a daughter between the ages 6-13 years who might also be interested in participating in the LEGACY Girls Study.

 

Description: http://legacygirlsstudy.org/sites/default/files/images/user/funky%20flowers.jpg4.  COMPENSATION/REIMBURSEMENT at your site:

  • Parents are reimbursed up to $25 for travel.
  •  

The New York LEGACY Girls Study visits offer your daughter:

  • A unique educational experience, teaching how real data is collected and why

her participation is so important.

  • Fun, interactive visits with pds and iPads with games available for downtime between  measurements.
  • A Barnes and Noble gift card at each visit.
  • A signed certificate of appreciation.
  • The opportunity to do something good!

 

  • What the study is
  • Why they should participate
  • Resources
  • What do I have to do?